Showing posts with label ASD. Show all posts
Showing posts with label ASD. Show all posts

Wednesday, October 5, 2011

Have We Met In A Past Life?





About two years ago a young mom came across my blog. She had just moved from NYC out to Westchester County, a move precipitated by her youngest son’s autism. They had tried to make it work in the city but the public schools offered little and the private schools were exorbitantly expensive – costing them over $50,000 a year to get their son an education that would help meet some of his needs. Exhausted, disillusioned and hemorrhaging money they sold their home at a $150,000 loss, moved out to the burbs and rented a home in a good school district. They packed up their lives into corrugate boxes, left behind the life they thought they were going to have and at a tremendous financial and emotional loss moved away.

On her son’s first day of public school in the new neighborhood she worried as she took him to his new classroom. The school district had his paperwork and file and seemed to be able to give him the support and resources necessary to meet his needs but this was a huge transition, tough on any child but particularly a child with autism. She has an older son, too. Like my older son, her child is neuro-typical, but nonetheless, having to pick up and leave everything he knew and start all over weighed heavy on her mind. Did they do the right thing for both boys? Was this going to work out? There was too much at stake for it to go terribly wrong.

She came home, sad and scared and Googled something like “Autism Back to School”. My blog, which was considerably new, somehow came up in her search with the entry Life’s Lesson Plan http://autism--tearsofaclown.blogspot.com/2009/09/lifes-lesson-plan.html. The entry was about sending Sean to school and how my worries were heavy and how every start of a new school year seemed to be another moment of grief and distress; my child falling so far behind the others, his face growing into a boy’s face and yet his mind still so much like a young child’s.

She read my blog and commented. There was something so raw and familiar in her words that I wrote back and asked if she’d like to talk more via email. We did. It was the start of a very unique and lovely friendship. She would read my blog and be my biggest cheerleader or a strong shoulder to rest on and leave messages of hope, strength and kinship. She, too, began blogging about her move to Westchester County, her children, her life, her music (she is a talented and a much revered musician). I’d leave her notes of encouragement, e-mails of optimism and somehow, without ever meeting each other face to face, we were each other’s closest allies and soft place to crash.

When I knew I’d be coming out to New York I didn’t hesitate making contact with her to let her know. She was excited and told me she could drive into the city on the weekend to meet.

Last Saturday I met her for the first time in the lobby of the hotel where I was staying. She was sitting on the stiff modern sofa looking at a magazine. I said her name, she looked up and it was like looking into the eyes of a dear friend. I can’t tell you how good it felt to meet the woman behind the keyboard, who shared so much with me in life and loss.

We walked down 39th to a little café and got our coffees and croissants. There was no awkward silence. It was as if we had known each other our whole lives, talking, commiserating and laughing. We only had two hours or so and I wish it could have lasted longer. It was not enough time to make up for the past forty or so years of not knowing her but it would have to do.

When I first started blogging it felt life a relief, a container to hold all that I could no longer keep inside my head and heart. But lately I have questioned what it’s all about. Sometimes I feel empty inside, nothing clever to say or no words rattling around in my tired head. But seeing her reminded me of all that I have gained from putting my story out there – connection and friendship, feeling less alone and scared.

I have written more about my trip to NYC and what it was like to leave behind the husband and the kids for five whole days at Lifeclectic Magazine. Here’s the link: http://www.lifeclectic.com/2011/10/04/coming-home/
Also, my friend's wonderful blog can be found at: http://onceuponasnowflake.blogspot.com/

Friday, September 16, 2011

Measurements and Assessments

Back to school seems to always be a gentle reminder of where things stand. By things I mean Sean -- where he fits in to the whole scheme of school and academics. He is now a fifth grader, entering his last year of elementary school and by almost every measurement, he is far behind the academic standards of a fifth grader.

I know that I am not supposed to measure Sean's growth and development by comparing him to his "typical" peers. Sean is by no means a "neuro-typical" child. I am reminded of this by his doctor, the occupational therapist, my husband and my own inner voice but it's hard not to think of where he could be if it weren't for autism shaking up his life and world.


Let's face it. We live in a world that ranks everything and celebrates winning and success. It's not a bad thing -- it's just the message that's out there. I have to remember that some successes aren't huge and enormous, that maybe Sean being able to pour syrup over his waffles all by himself or zip up his own coat and snap his hood are huge successes relative to our lives. It's progess, moving forward and growing -- a sense of independence.

It reminds me to keep perspective. It is just fine to do small things well. It is just as important. Mother Teresa's message was basically that -- "We can do no great things -- only small things with great love." Isn't that beautiful? It gives me a hope that it's not the task at hand that matters so much but rather how we carry ourselves through on that task, how we approach it, embrace it and lend heart and help to it.

So going forward I am going to let go of where my son falls on a bar graph or a pie chart -- and remember to focus on the boy he is rather than where he ranks or what percentile he falls. He is so much more than that. We all are, really.

This post is further "thinking" in regards to an article I wrote in Lifeclectic Magazine. Please check it out. http://www.lifeclectic.com/2011/09/09/school-daze/

Sunday, August 28, 2011

A Moment To Breathe

I have hidden myself away in a coffee shop in Sun Valley, Idaho. Alternative folk/rock pumping through the speakers, the whirl of milk being steamed and shots being pulled for lattes and morning Sunday chat are the soundtrack for my day. My husband drove me into town to have some "writing time" and I'm giddy with the freedom.

An old wire fan blows on my back as sunshine spills through the old, red clay windows and I type away taking breaks to gulp hot coffee. It's a nice break from the forest where we've been staying.

We made camp in an RV for the last couple of nights in front of my in-laws rental home. At night we open the windows to let in the cool desert air and starlight. The moths (is there such a thing as moth season?) are everywhere, circling the porch light and the screens, wings clipping and snapping keeping time with the river behind us.

I like the forest, but I think I'm more of a townie/city girl at heart. I could do without the dust and biting flies. But I do enjoy the openness, the music of river and birdsong and loose gravel. Sean and I took a long walk this morning while the others slept in. We walked to a lake where anglers sat on a bridge with their poles, the smell of fish and hay lifting from the fields. We walked over flattened squirrels and snake skins and even avoided what looked like moose poop. Sean skipped and hopped asking me to spell the words, "parade", "November" and "Joaquin". Occasionally a car would ramble past us but mostly it was just us and the dog taking advantage of the cool, morning air.

This afternoon, though, I have made it into town. Back to writing in coffee shops, without much interruption and plenty of inspiration.

I am posting a link to an article I wrote this morning for Lifeclectic. Feel free to check it out. It's called Soul Surfing. http://www.lifeclectic.com/2011/08/28/soul-surfing/